Small Cell Lung Cancer
For the Caregiver
Helping a loved one who has a small cell lung cancer (SCLC) diagnosis will be a challenge, but it also could be one of the most rewarding things you will ever do. From helping with day-to-day activities to being a source of comfort, providing this valuable help will require strength, patience and flexibility. You will benefit from sharing your feelings with another person other than your loved one who has cancer. Talking to other caregivers through online forums or in-person support groups can be educational and comforting.
Your responsibilities, which may change daily, will generally include the following.
Meet the health care team. You will be a key point of contact for your loved one, so it is essential that you are authorized to talk to the doctor, nurse navigator and case manager as well as access medical information, renew prescriptions and more.
Manage the household. From shopping and cleaning the house to managing a calendar of appointments and providing transportation, this is an area where you can delegate. Friends often want to help but don’t know how. When they offer, accept and be specific.
Track medications and symptoms. You will be responsible for ensuring all medications, from drug therapy to breathing treatments, are taken the way the doctor intended. Use the tools available, such as medication reminders and a medication tracking form. Download and print a Medication Tracking form at PatientResource.com/Medication_Journal.
Prepare important paperwork. All of us, whether or not we are facing a serious illness, should have an Advance Directive, Living Will, Will or Trust, and Powers of Attorney. If you do not already have an attorney, ask your case manager to connect you with one who can create these important documents for you.
Spend time with loved ones. Have them over for dinner, a walk or a visit. If you can, take a vacation and make lasting memories. Every day matters.
Learn to operate breathing accessories. Have extra supplies on hand. Try to never run out of equipment that helps your loved one breathe.
Encourage support. Social media has enabled people to offer thoughts and prayers easily. Those mean a lot, but sometimes actions mean more than words. Do what you can to help your loved one, and encourage friends and family members to do the same.
Practice self-care. To be an effective caregiver, you must take care of yourself. That includes making and keeping your preventive health care appointments, following a healthy diet, exercising, sleeping enough and making time for things that make you happy.
